After consulting with other experts, Katie's doctors decided to try to treat this rare tumor with chemotherapy, using a protocol which was developed by doctors at St. Jude's Hospital. The immediate point was to attempt to stabilize the tumor, and it was hoped that the chemo would shrink it, so that the tumor could be surgically removed. The other important hope with chemo was to try to kill the cancer; five rounds did stabilize the tumor enough for Katie to have her surgery, but it did not shrink it, or kill it. (It took Dr. Waldhausen, Dr. Cohen and their team 18 hours to take it out.)
Ronald McDonald House is truly a haven for families with critically ill children. It made our life in Seattle so much better, for all four of us. We are thankful to the donors and the volunteers who created such a wonderful place, and helped us feel welcome and sheltered there.